When the Middle is Shut Out

I’ve had no takers yet on the question about the absence of moderate voices in the public media in the Schiavo case.

Here’s what concerns me about the issue. When the quiet, moderate voices of the middle are shut out by the more extreme, theatrical voices of the poles, the national dialogue becomes distorted. That’s what’s happening, in my opinion, in the Schiavo matter.

Those at the extremes have framed the issues surrounding Ms. Schiavo and have set the terms of the debate. The advocates for extreme positions come at us as if there is no middle ground, only absolutes.

When words such as “starvation” and “murder” are used to describe this complex situation our ability to discuss it in a caring and constructive conversation is diminished. End-of-life decisions require considerably more nuanced discussion than these words capture.

We really need to have this discussion because the ability of the medical profession to intervene in processes that in the past would have resulted in death, is expanding. In many instances this is wonderful, life-preserving intervention.

But, in others, it is not. And the struggle we face is how to determine, in each unique situation, what is best for the individual whose life is at stake.

I yearn for this discussion to be conducted on the talk shows, in sound bites and on the pages of the newspapers. The voices of those who have not been heard are those in middle who struggle between the absolutes and are searching for a way through this complicated dilemma. They know it’s not as clear and easy to talk about complex ethical behavior in absolute language.

But as I write this, I don’t think those voices are being heard. As we move forward, I hope the quiet, moderate folks in the middle find their voices and contribute to the discussion.

And, by the way, I’m still looking for comments.

DeLay Faced End-of-Life Decision with Father

The Los Angeles Times reported on Sunday that Rep. Tom DeLay joined his family to not allow extraordinary medical intervention when his father experienced a brain hemorrhage in an accident several years ago. DeLay’s father did not have a living will.

After doctors advised the senior DeLay was in a vegetative state, the family agreed to halt extraordinary measures, saying he would not have wanted his life prolonged in this condition.

The blog Ethics Daily compiles several stories detailing the incident, including a report that the family won a wrongful death lawsuit against the manufacturer of a tram the senior DeLay was testing on his property in Texas when he died. DeLay is also among those leading a fight for tort reform claiming that such lawsuits are putting an undue burden on business and raising insurance rates.

Megachurches on Paradise Drive

When xxx’x article on megachurches, which is in this week’s New York Times magazine, is read as a companion to David Brook’s book On Paradise Drive, it’s a revealing look at the attraction of megachurches and the exurbs in which they are flourishing.

The Sounds of Silence? (or not)

I watched as many of the Sunday morning news programs as possible.

Apart from the obvious importance of the discussion about the ethics and politics of the Schiavo tragedy, I come away with a less obvious but intriguing impression.

It is this: voices from the Mainline Protestant communions are not present in the national dialogue in the public media. I’d like to hear this discussed, and I’ll pose it as a question.

Am I correct in assessing that the voice of Mainline Protestantism is absent from the national dialogue about Ms. Schiavo?

…is the
voice of
the Main-
line in
the national

What I mean by “voice” is an explanation by medical ethicists, theologians, bishops or clergy who know the ethical teachings of their respective denominations. Arguably, Jim Wallis of Sojourners, who was on NBC’s Meet the Press, could be counted among such voices, I suppose. However, he represents a movement, not the voice of a denominational tradition. It’s the absence of these communities of faith that I’m curious about.

Am I off-base about this? Are they present, but I’ve missed them? If so, I’d like to know. If not, does anyone else share this impression with me?

Feel free to leave a comment.

A Story for Times Like These

Who has not felt tired, battered and broken, these past several days?

War and famine tear at the global community. Death in a high school in Minnesota and inflammatory rhetoric in the halls of government, all leave me yearning for something in which to hope and searching for signs that life can be renewed.

Perhaps this is what the story of Jesus’ resurrection is about–hope and renewal.

It’s interesting that Paul, one who experienced rejection, beatings and imprisonment, and also one of the earliest writers in the Christian community, was explicit about this:

We are afflicted in every way, but not crushed; perplexed, but not driven to despair; persecuted, but not forsaken; struck down, but not destroyed. (2 Corinthians 4:8-9)

It is this message that captures the tired spirit and points it toward hope and renewal.

Everything old has passed away; see, everything old has become new, Paul continues. (2 Corinthians 5:17b)

Those who believed that Jesus’ ministry had ended with such finality in his crucifixion and death, report that death is not the end, after all.

There is more. Paul knows it’s unexplainable and beyond proving. To believe that hope is alive and the promise is renewed, requires an act of faith.

If we believe that grief and despair give birth to hope and new life, we act like it. And if we act like it, we discover it is so. Faith is the evidence of things hoped for, the conviction of things not seen. (Hebrews 11:1)

It’s a story for times like these.

The Red Lake Tragedy

The comments of the leaders of the Red Lake Tribe in Minnesota that their tragedy has not been acknowledged as fully as it should be drew me up short.

They have a point. As the tribe struggles to
come to terms with the shooting and deaths, the recognition of their pain is
certainly as worthy of attention and condolences as the painful events
surrounding Terri Schiavo.

Coming to
an understanding of the terrible actions of one of their own children is a
painful struggle for the whole tribe, and it should matter to the rest of us as
well. Acknowledgment of their struggle is important because it says they matter
and we care.

If we really are
concerned about the sanctity of life–all life in the human community–then we
need to express that concern. It’s one way to indicate that we are committed to
an inclusive community and that we feel a responsibility toward one another when
the community fabric is torn as the Red Lake community has

If we don’t voice our concern,
we relegate some members of the human family to the sidelines, unnoticed,
disregarded and disenfranchised. This is true for communties within the U.S.
and far beyond our borders. All people

Their point is

Easter Sunday

On Silence

Neither Starvation nor Suffering

I was unaware of this article in this morning’s New York Times as I wrote the post below. It should be reassuring to those making compassionate decisions to not intervene as loved ones face the end of life.

the article notes, the use of language frames the debate. It should also be
cautionary for all involved about how words can be emotive and manipulative, as
well as highly inaccurate and misleading. Compassionate people can disagree.
But those who knowingly use words to frame the debate for political advantage
are engaging in an especially cynical abuse of language and of our

On Viewing Life From Good Friday

Readers of this blog know that I write from a perspective of faith. It’s how I attempt to make sense of life. But I’m sensitive to the realty that this may not be how you do it. In fact, it may be a turn-off. Christianity has taken a beating lately what with John Ashcroft, Jerry Falwell and Tom DeLay as its most visible public representatives.

It’s been used to sanction war, greed and nationalism. The Jesus who threw the money changers out of the temple, championed the poor, healed the sick and told the rich man it would be easier for a camel to walk through the eye of a needle than for him to get to heaven, has been turned into a pale, polite, middle class image of shopping mall capitalism.

It is Good Friday, a day when Christians pray and reflect quietly on life’s meaning in the face of Jesus’ death, anticipating hope for life beyond death. It precedes Easter, the holiest and most celebratory of all Christian sacred days when we claim the promise that life is more than we know in our physical experience. And I’ve been thinking about these things today.

been a rough time for me the past few days. The memories invoked by the Terri
Schiavo spectacle have cut deeply. I’ve thought about this intensely, prayed
about it, tried to put it in perspective.

Four years ago this July, my
spouse, our daughters and I, sat for three excruciatingly painful weeks at the
bedside of our dying son and brother. It was an experience I would not wish for
anyone to endure.

To be clear, our
circumstances were different from Ms. Schiavo’s. Matt had prepared an advanced
directive. We followed his

His condition was different
from Ms. Schiavo’s, but the decision to not intervene with extraordinary
measures is the same emotionally devastating decision, regardless of the unique
circumstances. When Tom DeLay said that withholding a feeding tube was a
barbaric act, it was as if someone put a branding iron to my heart. It was
searingly insensitive and cruel.

know that as I write this, parents, husbands, wives and children are sitting in
a hospice, or a hospital room, waiting as we did for a loved one to reach life’s

And they are aware of the
public debate that is raging, hearing the inflammatory rhetoric and perhaps
questioning their own decisions. They will look deeply at their motivations,
painfully evaluate negative characterizations about this most sacred human
experience and struggle with difficult decisions they must make about life
support and palliative care. The kindest, most loving thing they can do may be
to allow their loved one to die naturally without intervening, but DeLay has
framed this as a barbaric act.

deserve better. They deserve support, compassion, affirmation and sensitive
listening. They wait in agony, grasping to understand circumstances that none
of us are prepared for, trying to make a loving decision under extraordinarily
difficult conditions.

They face
stress now and they will face it later. Bereavement following the loss of a
child can lead to mental illness, disintegration of marriages, depression and
abuse of alcohol and other drugs, according to a study conducted by the Danish
Epidemiology Science Center and appearing in The New England Journal of

But they are not
receiving compassion from our national leaders and their pandering preachers.
They’re hearing words tossed about such as starvation, barbarism, euthanasia and
assisted suicide. This is more than disgusting, it’s shameful.

No loving parent wants to watch a
child die. It’s not how life is supposed to be. But rail as we might against
the injustice of it all, it happens. And there’s no way out of it but through

For me, it was the most painful,
yet sacred experience I’ve ever been through; and also the most confusing. I
experienced a jumble of emotions so deep that they went to the core of my soul.
It was heartbreaking and spiritually elevating at the same time. I never felt
more alone, nor more connected to and loved by those around

I became afraid of the dark, and
yet I felt as close to the presence of a loving God as I’ve ever been. I read
the scriptures and they came alive in a way I’d never experienced

I’ve not written publicly
about this because it’s been too painful and too private. But I write today
after prayerfully reflecting upon the trauma inflicted by the political
spectacle surrounding Terri Schiavo. It’s been hurtful in more ways than the
politicians will ever understand. Their shamelessness intervention and the
clergy who have given them theological cover is breath-taking for its
insensitivity and lack of

Let’s be clear that they
did not have to step into this broken family’s dispute. They made extraordinary
effort to create this trashy spectacle, betraying their own claims about respect
for the sanctity of life and the dignity of all persons. And the clergy could
have spoken of the need to offer pastoral care and counseling to the family, of
the fullness of life under God and the great moral challenges that we face in
circumstances such as this. But that is not the path either group chose.

We need serious discussion about
end of life care, genetic therapy, medical research and access to health care.
If we did have this conversation, we would talk seriously about what makes for a
life of quality. And we would discuss the insight contained in the sacred
writings and holy scriptures of the world’s

We would talk about our
responsibility to care adequately for citizens with disabilities and ensure
their rights. We would talk about preventive care and guidelines for end of
life intervention. We would talk about adequate funding for all of us to have
access to health care. And we would talk about an holistic life, a life imbued
with the sacred; life as body, spirit and

We might come to understand
that there are worse things than death, a point made by Rubel Shelly, a doctor
of philosophy at Vanderbilt University. Shelly has written the most cogent and
compassionate words I’ve seen on this issue in an op-ed piece that appeared in
Tennessean, Nashville’s daily newspaper, on March

example, if an individual cannot bear to exist in a conscious state because of
excruciating pain is that a life of quality? If a person near the end of life
stops eating, should we force nourishment through a feeding tube? If a person
with a degenerative condition cannot communicate, recognize loved ones, display
cognitive functions, think, is a that a life of

But we don’t have the kind of moral
leadership today at the national level that can help us to conduct this
important conversation. Even the Vatican let us down on this one. An editorial
in L’Osservatore Romano asks, “Who can judge the dignity and sacredness of the
life of a human being made in the image and likeness of God? Who can decide to
pull the plug as if we were talking about a broken or out-of-order household

Well, unfortunately,
like it or not, someone is confronted with this dilemma everyday. And framing
the question like this does not help them resolve their dilemma, it denigrates
their profoundly moral considerations. It may even lead them to prolong life
that does not “reflect the sacredness of a human being made in the image and
likeness of God.”

So, on this Good
Friday, I’m praying for the Schindlers, Michael Schiavo, and, of course, for
Terri Schiavo. I’m also praying for those sitting at the bedside of a loved one
struggling with painful, weighty decisions. And I say to you, in all humility,
that as crushing as it seems right now, you can get through.

I hope you are inclined to believe
that God is with you, cares about you and embraces you. And I hope you find
support from clergy and friends, and comfort in

And, I’m praying that leadership will
arise in this nation that can help us recover compassion and enter into dialogue
that leads us to a more just and caring

And finally, to those who
read this and conclude that I am less than charitable toward the politicians and
clergy who have been most vocal in this spectacle, I hope you understand that
how they have framed this issue is deeply offensive, insulting and denigrating
to me.

My experience with my son
was not barbaric, it was sacred, and for me to remain silent as these people
trash it with intemperate language and political grandstanding seems a betrayal
of my son and the awe-filled experience we shared together as a family at his

And I will pray for my own
ability to find compassion in my heart for those with whom I disagree so
strongly. I will ask God for the ability to respect them even as I vociferously
reject their actions.

And I will
look hopefully to the sunrise of Easter morning for the renewing presence of a
loving God who calls us to heal the wounded, comfort the afflicted, bring
wholeness to broken and to live a life imbued with sacred value.

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